Congenital Diaphragmatic Hernia (CDH) is a severe birth defect affecting 1000's of Little Cherubs worldwide every year. This is a cause that is very close to my heart and I am proud to to support CDH awareness month and International CDH awareness day on April 19.
Just to give you a bit of information, the diaphragm is the bit of muscle between the chest and abdomen, that helps us to breathe. A Diaphragmatic Hernia occurs when there is a hole or opening in the diaphragm allowing organs from the belly to move up into the chest cavity. The survival rate is only 50%-60%, resulting in 1000's of deaths. Globally 300,000 little cherubs have been affected, and over half not surviving this devastating condition.
My little sister Abbie miraculously survived her Left Congenital Diaphragmatic Hernia, spending 19 days in the New Born Intensive Care Unit at the Royal Children's Hospital Melbourne. Being surrounded by babies suffering life threatening conditions and helping to care for Abbie who very nearly lost her life, was the beginning of this passion to help and support seriously sick babies. We here at Little Cherubs believe every little cherub is precious and should be given every possible chance to live a full life.
I encourage you to help raise awareness about this condition, to support families and research, ensuring the Cherubs effected are in the best care. This month take a stance and raise awareness.
Please visit cdhi.org or CDH Australia to learn more and donate to this vital cause
Congenital Diaphragmatic Hernia International (CDHi) is the world's leading foundation in supporting CDH, working with the World Health Organisation (WHO) to improve standards for CDH care across the globe. Providing vital research information and working to improve standards in hospitals worldwide including Sydney Children's Hospital and the Royal Children's Hospital.
If you or anyone you know is effected by CDH in the family please contact CDH Australia for local support services. Every Cherub matters. You are not alone.